Underprivileged
We created a fund specifically for families from underdeveloped countries who do not have access to health care or the ability to travel to receive care in another country.
Many children who are afflicted with a rare disease or a disease that has yet to be identified, require 24-hour support and care. Parents dedicate themselves, and there is no better person to do it. However, that means they must sacrifice their jobs and goals. We are there to guide parents through this commendable effort.
Our fourth event in the Caregiver Lifestyle Series focused on Sensory Integration (SI) therapy. We had an interest in this…
As a columnist for AADC News for almost two years, many issues and activities related to aromatic l-amino acid decarboxylase…
When our daughter was 8 months old, we learned she had aromatic l-amino acid decarboxylase (AADC) deficiency. We knew more…
What is the best gene therapy available for AADC deficiency? As parents of a daughter with aromatic L-amino acid decarboxylase…
We returned for the 2nd event in our 5-part Caregiver Lifestyle series. On March 19, we welcomed Developmental Psychologist from…
On February 19th, Teach RARE and Hrabrisa launched the first event in Caregiver Lifestyle Series. This month was chosen in…
Consider sponsoring a child with a reoccurring donation. This supports intensive and consistent intervention. Families will receive preferred pricing when they book multiple sessions over time. Your payments will support a child making continued and sustainable progress.
We created a fund specifically for families from underdeveloped countries who do not have access to health care or the ability to travel to receive care in another country.
Many mothers of children with rare disease, undiagnosed diseases, or special needs find themself the sole caretaker of their children. We aim to be their support partner.
Leveraging technology, we can support more people and connect with the world. Our technology fund helps to ensure all families have access to essential digital tools.