Behavioral Therapy Rare Disease

Behavioral Therapy Event

Our fifth and final Caregiver Lifestyle Series concluded with a focus on behavior therapy. It is one of the main focuses we work on with our own daughter and therapy we felt very unprepared to deal with. We were excited to not only be hosts of the event, but also participants.

What is behavior therapy?

Mental, emotional, and behavioral problems at childhood can cause long-term issues if not addressed. Working with a child psychologist can help to prevent long-term health problems. In addition, it will help your own health and well-being as a caregiver.

Like all the therapy sessions we hosted, early intervention is key to treating a child’s mental health problems. Behavioral problems can be a result of typical development or a symptom of your child’s rare disease. Psychological therapy is necessary to improving your child’s mental health.

Depending on the issue, behavioral therapy may be combined with other therapies or even medication. For our family, we always combine therapy strategies at home to maximize progress and accomplish educational goals at the same time.

Our final Caregiver Lifestyle Series taught families how to strengthen positive child behaviors and tips on how to manage issues.

"Parent led behavior therapy has the strongest evidence as an effective treatment for correcting disruptive behavior problems in children."
Behavioral Therapy Rare Disease
Behavioral Therapy
Teach RARE

Child Psychologist

Dr. Rolando Jubis, licensed psychologist and school counselor, will review strategies to manage behavior at home and how to support emotional regulation.

Medication and behavior therapy.

The American Academy of Pediatrics recommends that doctors prescribe behavior therapy before medicine for preschoolers. Sadly, fewer than half do. We are not against medication, but it is important to follow the process. There is no perfect solution, or a one size fits all answer. It will be a methodical approach that tailors to your child’s needs.

Many childhood conditions, behavior disorders, anxiety, or depression, benefit from behavior therapy approaches without the use of medication. In fact, behavior therapy and cognitive-behavior therapy are more likely to reduce symptoms. The challenge for parents is treating the specific issue’s root cause.

This is completed through an assessment and discussion with a psychologist. It is important to work with a psychologist and to follow their guidance.

“A pill can decreases common symptoms like impulsivity and distractibility with ADHD medication for example. However it does not change behavior. A child taking prescribed medication can become more declined to act aggressive or impulsive, they still need to be taught how to handle situations. Behavior therapy teaches your child positive alternative behaviors.”
Behavior Therapy with a licensed child psychologist.
Dr. Rolando
Child Psychologist

Which approach is the best?

Finding the right therapy for your child is the answer to this question. You can talk with your child’s doctor and psychologist. Ask for homework. You can then apply the approach to daily routine.

You also need to consider external issues that affect your child or may trigger behavior problems. This includes health problems, poor sleep, breathing problems, poor vision, difficulty hearing, or learning problems.

Dr. Rolando says to think like a detective. Record your observations and consider your child’s perspective. Step into their world. If you are thinking from your own perspective, you may miss triggers.

Here are some tools to help find a healthcare provider familiar with treatment options:

Factors to consider

It’s common for parents to immediately think of the worse and want to label their child as having something wrong when they display undesirable behavior. Here are a few factors you should first consider, however, before jumping to conclusions.



Sure, a two-year-old can be “terrible,” but any parent will tell you that that “terrible” label often doesn’t stop being true just because the child turned three. Push-back from children as customary for a specific age.



Many parents expect too much too soon from children. The truth is that children can develop at different paces. Just because your child hasn’t yet hit milestones doesn’t necessarily mean there’s an issue.



Sudden behavior changes could be related to what’s going on at home. If you moved to a new home or you had a family member pass away recently, it takes children more time to adjust to big changes.

Signs and Red Flags

When thinking about your child and how they behave, these are the warning signs that indicate help is definitely needed.

Refusal to change: Children won’t change their behavior no matter the consequences

Aggression: Children constantly break things, hurt others, or make threats

No remorse or empathy: Children don’t seem to care about other people and their feelings

Self-injury: Children continually hurt themselves, such as by banging their head on a wall

Animal cruelty: Children try to hurt your pets or other animals

Behavior Therapy Presentation

Before you watch the video recording of our workshop, you can review the notes of the presentation in a PDF format. Use it to record notes while watching.

Behavior Therapy Caregiver Workshop

Below is the video for our Caregiver Lifestyle Series – Behavior Therapy event. The event is available in multiple languages and made available for information purposes.

Behavioral Therapy

6 Videos

Thank you to our partners and sponsors for making this series possible!

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