Available in more than 10 Languages
Simultaneous language translation will be available for more than 10 languages:
Arabic, Chinese, English, French, German, Italian, Polish, Portuguese, Serbian, Spanish, Thai, and Turkish.
For caregivers to share and learn from professionals.
Our first event features professional and innovative physical therapists. We will demonstrate exercises in three levels and incorporate educational strategies.
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UPCOMING EVENT

Resources and strategies to support progress at home.

Play-Based Learning That Incorporates Therapy Goals

As parents of children with rare diseases, we tried to support our children as best we could. There was limited or no resources available. We connected with other organizations and we learned to adapt to our rare disease.

We sought professional guidance from therapists, but sessions were expensive. This meant we needed to be strategic with the paid services. We found ways to incorporate strategies into our daily life at home.

We know the importance of early intervention. Our goal is to bring these strategies to caregivers so they can create the same supportive lifestyle.

behavioral-therapy-event

Caregiver Lifestyle Series Fund

Your donation supports future events like this!
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Personal Info

USA

Bank Name: Coastal Community Bank

Account Name: Special Education Teaching and Learning Inc.

Routing Number: 125109019

Account Number: 875102981714

Thailand

Bank Name: Bangkok Bank

Account Name: Wan-Yu Wei

SWIFT Code: BKKBTHBK

Account Number: 1307508380

Teach RARE QR Payment

Terms

Donation Total: $100.00

Rare Disease Children

CAREGIVER
Registration Form

Complete the form and join our event!

Registration Rare Disease Event
Join with us and MAKE A DIFFERENCE!

Caregiver Lifestyle Series: Tips and Resources for Supporting Children with Rare Diseases

Our first event was held in honor of Rare Disease Day. We will host an event on the 3rd Sunday of every month for a total of 5 events and one in-person meetup. Our next and final event will be on June 18th, focusing on behavioral therapy and how to combine it with educational activities.

The Caregiver Lifestyle Series is a collaborative project by Hrabrisa and Teach RARE. Both non-profit organizations provide a similar mission and caregiver lifestyle strategies on different sides of the globe. They even share a nearly identical story of a daughter suffering from a rare neurotransmitter disorder. Their organizations have joined forces and experience to create an exceptional series of events.

Available in more than 10+ languages!

Event Translation

By caregivers and for caregivers.

We are creating a high-quality online educational support series for caregivers in rare diseases, undiagnosed diseases, and special needs communities.

Each event in the series will occur on the 3rd Sunday of each month and focus on a specific therapy. Professionals will provide multi-tiered activities and strategies that caregivers can implement at home to support progress while making memories with their child.

Teach Rare Verification

Thank you to our partners and sponsors for making this series possible!

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WE DON’T WANT YOU TO MISS GREAT EVENTS LIKE THIS!

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Our upcoming events

We have live and in-person events throughout the year!
Listen and learn directly from the perspective of those in the rare disease community.

RARE Voice Podcasts

The RARE Voice is a podcast dedicated to rare diseases. Through our personal journey and interactions with others, we share the voice of the rare.

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