HELP THE RARE

Families in rare diseases do not receive the same funding or attention as those with high incidence rates.

Raised so far

$2,367

Aim Bright Stars – Tutoring and Consultation
Board – Our Team
- Our Organization
  
  LEARN MORE
Events – Meet Up
- - Events
  - Caregiver Lifestyle

RARE News – News & Information
- February 14, 2025
  
  News
  
  Dad Quits His Job and Starts Minecraft Server For Autistic Son
  
  February 2, 2025
  
  Charity
  
  Saving Baby Akin’s Life
  
  February 1, 2025
  
  Therapy
  
  Protactile Language for Deaf and Blind
  
  January 26, 2025
  
  Health
  
  Study Links Viruses With Alzheimer
Services – Rare Disease & Special Needs
Contact – Connect With Us
- FName
  
  LName
  
  Email
  
  Telephone
  
  Subject
  
  Message

News

Home Page 3

News

TeachRare’s Physical Therapy Event – Promoting Inclusivity and Access to Education for All

News

A Rare Disease Parent’s Journey: Going Full Circle with TeachRare

News

A Mother’s Message of Hope for AADC Deficiency

January 23, 2023
by Judy Wei

News

A Father’s Perspective on AADC Deficiency

News

A Brazilian Mom’s Story of AADC Deficiency and Hope

News

Prayers and Miracles at Work: Stories of Hope from TeachRare

teachrare

325 15,706

Providing #educational services for children in the #raredisease, undiagnosed disease & #specialneeds communities
📌 International #education services

One of my favorite parts of The Rare Journey Series is seeing science, family stories, and imagination come together through the incredible artwork of @lomakina.space . 🎨🧬

From AADC deficiency to Friedreich’s ataxia and now Duchenne muscular dystrophy, Anna has created a visual world that makes complex science feel approachable, warm, and exciting for young readers.

But look closely. 👀

Each illustration is more than simply beautiful. Hidden throughout the pages are little Easter eggs inspired by the real families behind each story. A favorite activity. A meaningful place. A family memory. A tiny detail that might seem ordinary to most readers but means everything to the people whose journey inspired the book.

That is what makes Anna’s artwork so special.

Every page helps teach the science, but it also reminds children that behind every rare disease are real people, real families, and wonderfully unique lives.

We are incredibly grateful to Anna for helping Prof. Hong and the red panda come alive, one rare journey at a time. ❤️

Which cover is your favorite?

#RareDisease #rarediseaseeducation #childresbooks #inclusiveeducation #rarediseaseawareness

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Open post by teachrare with ID 18421442314157540

One of my favorite parts of The Rare Journey Series is seeing science, family stories, and imagination come together through the incredible artwork of @lomakina.space . 🎨🧬

From AADC deficiency to Friedreich’s ataxia and now Duchenne muscular dystrophy, Anna has created a visual world that makes complex science feel approachable, warm, and exciting for young readers.

But look closely. 👀

Each illustration is more than simply beautiful. Hidden throughout the pages are little Easter eggs inspired by the real families behind each story. A favorite activity. A meaningful place. A family memory. A tiny detail that might seem ordinary to most readers but means everything to the people whose journey inspired the book.

That is what makes Anna’s artwork so special.

Every page helps teach the science, but it also reminds children that behind every rare disease are real people, real families, and wonderfully unique lives.

We are incredibly grateful to Anna for helping Prof. Hong and the red panda come alive, one rare journey at a time. ❤️

Which cover is your favorite?

#RareDisease #rarediseaseeducation #childresbooks #inclusiveeducation #rarediseaseawareness

teachrare Oct 3

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We are proud to announce the third book in The Rare Journey Series: Prof. Hong Explores Duchenne Muscular Dystrophy. #duchennemusculardystrophy #raredisease #therarejourneyseries

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Open post by teachrare with ID 18127300747649413

We are proud to announce the third book in The Rare Journey Series: Prof. Hong Explores Duchenne Muscular Dystrophy. #duchennemusculardystrophy #raredisease #therarejourneyseries

teachrare Oct 2

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Rylae learns Chinese #aadcdeficiency #chineseclass

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Open post by teachrare with ID 18175830802453555

Rylae learns Chinese #aadcdeficiency #chineseclass

teachrare Sep 28

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Rylae had a dislocated hip and underwent surgery to give her the chance to learn to walk. Just eight months after her life-changing brain surgery (gene therapy), she faced yet another challenge.

Through it all, she never lost her smile. She stayed bubbly, brave, and full of joy. Her resilience continues to inspire us every single day. 💜

#RylaesJourney #AADCDeficiency #hipdysplasia #hipsurgeryrecovery #spicacastlife

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Open post by teachrare with ID 17996993123979169

Rylae had a dislocated hip and underwent surgery to give her the chance to learn to walk. Just eight months after her life-changing brain surgery (gene therapy), she faced yet another challenge.

Through it all, she never lost her smile. She stayed bubbly, brave, and full of joy. Her resilience continues to inspire us every single day. 💜

#RylaesJourney #AADCDeficiency #hipdysplasia #hipsurgeryrecovery #spicacastlife

teachrare Jul 13

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Dad Quits His Job and Starts Minecraft Server For Autistic Son

Saving Baby Akin’s Life

Protactile Language for Deaf and Blind

Study Links Viruses With Alzheimer

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Thailand

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