
$50 of $50,000 raised
Parent Workshops
Education parent workshops support parents of rare diseases, undiagnosed diseases, and rare diseases in making progress.
Donate NowEducation parent workshops support parents of rare diseases, undiagnosed diseases, and rare diseases in making progress.
Donate NowSupport educational parent workshops that provide instructions about strategies, tips, and activities to care for rare diseases, undiagnosed diseases, and special needs. Parents are the frontline caregiver for their children, and through their efforts, their children can make progress.
Often times, specialists are expensive and insurance does not cover therapies. We aim to empower parents. Workshops are performed face-to-face or online. We provide parents with all the necessary resources. In addition, we have licensed and experienced guest speakers who offer specialist advice.
A fund for families of with angles that passed due to AADC deficiency. Your donation supports the parents during this difficult time.
Donate NowA fund for families of with angles that passed due to AADC deficiency families. Sadly many of these babies passed. During this difficult time we will support families carry their burden. A 100% of all funds received will go directly towards the families.