Rare Disease Parent Workshops

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Parent Workshops

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Support educational parent workshops that provide instructions about strategies, tips, and activities to care for rare diseases, undiagnosed diseases, and special needs. Parents are the frontline caregiver for their children, and through their efforts, their children can make progress.

Often times, specialists are expensive and insurance does not cover therapies. We aim to empower parents. Workshops are performed face-to-face or online. We provide parents with all the necessary resources. In addition, we have licensed and experienced guest speakers who offer specialist advice.

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Donation Total: $100