In the United States, a disease is considered rare if it affects fewer than 200,000 Americans. Some countries and the European Union have similar but slightly different definitions.
According to the National Institutes of Health (NIH), approximately 7,000 rare diseases affect between 25 and 30 million Americans. This equates to 1 in 10 Americans, or one on every elevator and four on every bus.
Every little bit counts. We are working on growing our organization, and that has been possible because of our community. We are not only looking for financial donations. Volunteer, share, and contribute content. Donate in the manner that works best for you!
Share your ideas and let us know how you can best help. Your ideas combined with motivation will lead to lasting and meaningful change!