Sensory Integration Virtual Event
Our fourth event in the Caregiver Lifestyle Series focused on Sensory Integration (SI) therapy. We had an interest in this therapy when our daughter was
Raising funds for essential equipment and tools.
Working with parents and organizations on rare diseases.
Creating awareness and advocating for funding.
Join our team by becoming a volunteer. Alternatively, you can donate to help fund a workshop or project for our community of rare diseases, undiagnosed diseases, or special needs.
Our fourth event in the Caregiver Lifestyle Series focused on Sensory Integration (SI) therapy. We had an interest in this therapy when our daughter was
As a columnist for AADC News for almost two years, many issues and activities related to aromatic l-amino acid decarboxylase (AADC) deficiency have come my
When our daughter was 8 months old, we learned she had aromatic l-amino acid decarboxylase (AADC) deficiency. We knew more about the challenges she would
What is the best gene therapy available for AADC deficiency? As parents of a daughter with aromatic L-amino acid decarboxylase deficiency, we asked this question
We returned for the 2nd event in our 5-part Caregiver Lifestyle series. On March 19, we welcomed Developmental Psychologist from Vejthani Hospital and founder of
On February 19th, Teach RARE and Hrabrisa launched the first event in Caregiver Lifestyle Series. This month was chosen in honor of Rare Disease Day.