Our Priorites

Our Efforts

Our Funding Priorities Areas

Health

Navigating the health care system and registering for clinical trials.

Education

Working with schools and developing curriculum for education systems.

Workshops

Workshops and training for individuals and groups.

Equipment

Raising funds for essential equipment and tools.

Consultations

Working with parents and organizations on rare diseases.

Awareness

Creating awareness and advocating for funding.

Get Involved

Now, it’s your turn.

Join our team by becoming a volunteer. Alternatively, you can donate to help fund a workshop or project for our community of rare diseases, undiagnosed diseases, or special needs.

NEWS FOR THE RARE Disease COMMUNITY

Read The Real Story

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