Children’s books play a crucial role in inspiring and teaching kids. Students exposed to vocabulary and reading demonstrate greater academic achievement. However, books also serve as a tool to foster imagination and creativity. Finally, our books teach imortant morals and values essential for society.

Documenting our journey began as a difficult process, but once we realized that we could have a profound effect on our community, there was no stopping us. We want to share our perspective while also inspiring and motivating others facing hardships. As we connect with readers, we hope to also raise awareness.

Creating unit and lesson plans based on brain-based learning and holistic learning experiences is important since it aligns with the latest research on the brain and how children best learn. We want students to engage with learning and be motivated to go beyond. By reaching young minds, we can enhance their knowledge while also making a difference in the rare disease community.

Writing a research paper seemed like a task reserved for scientists. However, we realized there was discovery and innovation in our journey. We documented our experience and collected data to share with other families. We based our strategies on the research we could synthesize and integrate into our lives. We are now working on sharing and conducting more research.