BBC Sounds Health Check
During the episode of Health Check, we discussed our family’s journey to our recent move to Thailand. Our quest to receive a diagnosis for our daughter, Rylae-Ann, is a story of determination and parental intuition.
Our daughter was fortunate to have gene therapy in a clinical trial in Taiwan. It transformed her life, and we shared that miraculous transformation with BBC Sound.
Listen to the podcast on the BBC website. It includes additional information from doctors. We were excited to share our parent’s perspectives with the BBC reporters.