HuffPost Rare Disease Life-Changing Experience
Richard Poulin IIIAwareness is a key mission of Teach RARE. Sharing a personal story can be scary, but it greatly impacts readers, especially those who have never heard about rare diseases.
That is why we were very fortunate to have our story shared in HuffPost. Other readers outside the rare disease community get exposed to the challenges of being a rare disease parent or caregiver. We hope that the article inspires other parents facing challenges and inspires some to take action in supporting rare disease initiatives.
There are many other notable My Story articles that will also inspire readers.
HuffPost Article
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HuffPost, formerly known as The Huffington Post, is an American news and opinion website and blog. Founded by Arianna Huffington, Kenneth Lerer, Jonah Peretti, and Andrew Breitbart in 2005, it offers news coverage, original reporting, and a platform for bloggers on various topics, including politics, entertainment, technology, lifestyle, business, and more.
HuffPost is known for its diverse content, often featuring a mix of breaking news, investigative journalism, and opinion pieces from a wide variety of contributors. It gained popularity for its liberal political stance and pioneering use of blogging and user-generated content in a mainstream media outlet. The site was acquired by AOL in 2011 and later by Verizon Media. HuffPost has expanded globally, with editions in various countries and languages.
Life-Changing Experience Article Review
Richard Poulin and his wife Judy embarked on a new chapter in their lives when they accepted teaching jobs in Singapore. Their joy was overshadowed by concern for their daughter, Rylae-Ann, who showed delayed development from an early age. Despite visiting multiple doctors and undergoing various tests, a definitive diagnosis eluded them until a chance Facebook post led them to suspect Aromatic L-amino decarboxylase (AADC) deficiency.
Their journey took them to Taiwan, where Rylae-Ann underwent groundbreaking gene therapy. The surgery was a success, and Rylae-Ann began to show remarkable progress, eventually reaching significant milestones like sitting up on her own, swimming, walking, and even riding a horse. Today, she continues to thrive as an independent child exploring the world.
Judy and Richard now dedicate their time to supporting other families facing rare diseases through their non-profit organization, Teach RARE. Their mission is to raise awareness and educate caregivers on integrating educational activities with therapy goals, offering hope and inspiration to families in similar situations..