Bangkok Caregiver Meet-up
An outsider looking in may have just seen parents coming to learn, therapists offering free services, students volunteering their time, and teachers coming in on their day off. But what it
An outsider looking in may have just seen parents coming to learn, therapists offering free services, students volunteering their time, and teachers coming in on their day off. But what it
Murals have long been celebrated as a form of public art that transcends boundaries, ignites conversations, and fosters a sense of community. Beyond their aesthetic appeal, murals have the power
In the realm of healthcare, the term “rare disease” often conjures images of a battle fought in isolation, with limited resources and support. This reality is all too familiar for
Caring for a loved one with a rare and challenging medical condition like Aromatic L-amino acid decarboxylase (AADC) deficiency can be an overwhelming journey. Caregivers often find themselves searching for
Just before the annual 4th of July fireworks went off in the Boston harbor, parents from the rare disease group known as AADC Deficiency met to discuss strategies we learned
Life as a rare disease or special needs parent has many challenges. However exclusion is a difficult barrier each time a family faces it.
