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Projects
- HuffPost Rare Disease Life-Changing Experience
- Rare Disease Concert
- The Rare Journey Series
- Orphanet Journal of Rare Diseases Publication
- Rare Talks Spotify Podcast
- BBC Sounds Health Check – TeachRare’s Partnership in Promoting Health and Well-being
- Metabolic Support UK Nomination
- Patient Expert for NICE – Teach Rare Project
- TeachRare’s Review in New Scientist: Gene Therapy Offers Hope for Children with Rare Diseases
- TeachRare’s Richard Poulin Recognized as Social Impact Hero by Authority Magazine
- SSIEM 2022 Symposium
- Houston AADC Meet Up 2022
- 14th European Epilepsy Congress
- European Medicines Agency Conference
- Rare Disease Day 2022
- International Epilepsy Congress – Advancing Research and Awareness to Improve Epilepsy Care
- 14th Congress of the European Paediatric Neurology Society
- Enrolling in Clinical Trials Workshop: Empowering Families of Children with Rare Diseases
- Child Neurology Foundation Genetic Testing
- Play-Based Learning Workshop: Enhancing Development for Children with Rare Diseases
- CheckRare Interview
- Annual Charity Fundraiser
Events
NonePosts
- When Promising Treatments Are Left on the Shelf, Families Cannot Stay Silent
- Rolling Boldly Toward Awareness and Community
- Roadmap for Children After Gene Therapy
- UK Daughters DNA Is Helping Other Families
- Experts Push For More DMD Clinical Trials To Include Patients Who Can’t Walk
- Cell-Based Therapies Show Potential to Promote Repair in Multiple Sclerosis
- Negative Pressure Vacuum Wound Therapy
- Key Concepts To Build Strength in Children
- Dad Quits His Job and Starts Minecraft Server For Autistic Son
- Saving Baby Akin’s Life
- Protactile Language for Deaf and Blind
- Study Links Viruses With Alzheimer
- Neuroscientist Reveals How Meditation Affects Our Brain
- Raising Awareness of Female Carriers of X-Linked Rare Diseases
- Skateboarding For Special Needs Kids
- Failure Of Special Education System In Public Schools
- ERT Improves Young Son Quality Of Life After Rare Condition Diagnosis
- FDA Approve First Brain Gene Therapy PTC Kebilidi
- Transcranial Magnetic Stimulation (TMS)
- Enzyme Replacement Therapy
- Benefits of Foot Sensory Activities
- Human Nature: A Film About The Biggest Breakthrough in the 21st Century
- High Divorce Rate For Families with Special Needs Children
- Magic Mushrooms And Psilocybin Therapy
- Which Are Better, High Tops Or Low Tops Shoes?
- How Novelty Supports Cognitive Development
- The Anterior Mid-Cingulate Cortex
- Which Peptides Are The Best Peptides?
- Father Creates a Cure for His Son’s Rare Disease
- Precise Microsurgery Assistance Robot Offers Better Results
- More Evidence Suggests Alzheimer’s Caused by a Virus
- CBD and Edibles for Kids
- Beckman Oral Motor Protocol
- Dried Blood Spot Testing DBS
- Anti-Spill Gyro Balance Bowl
- Robotic Massage May Replace Physical Therapy
- ASHA Warns Against Rapid Prompting Method or Spelling to Communicate
- EveryCure Synthesizes Drug Knowledge to Maximize Uses
- Why Neurodiverse People Struggle With Feelings of Shame
- Dad Sold His Business To Build $51 Million Special Needs Park
- Surgical Lights Cast No Shadow: Breakthrough in the OR
- RNA Therapy for Rare Diseases
- Prosthetic Limb That Restores Movement And Senses
- First Exclusive Online Health Consultation For Rare Diseases
- Island Hopping For Answers and Treatment
- What is CSF Testing?
- Chinese Scientists Create A Robot With A Brain
- Nanotechnology Allows You To Swallow Your Doctor With Nanobots
- Bridging Barriers: A Journey of Connection and Hope with a Canadian Mom in the AADC Deficiency Community
- From Pain to Power: Barby Ingle’s Journey from Patient to Advocate to Political Influencer
- Remote Robotic-Assisted Surgery from Abroad
- Pangolin-Inspired Robot Performs Minimally Invasive Surgery
- VALE Designs Adaptive Clothing
- Prof. Hwu Discusses the Past and Future of AADC Deficiency
- Innovating CRISPR To Make SeekRNA Gene Editing
- New Organ Donation Gives Hope for Children with Rare Diseases
- The Importance Of Daydreaming And Its Effect On The Brain
- Your Spine Remembers Movement
- Brain Acidity Linked With Multiple Neurological Disorders
- Samsung Enters the Rare Disease Innovation Market
- Fun Underwear Run for Rare Diseases
- Maximizing Summer Plans
- What Is Multisensory Instruction?
- Nick Vujicic Overcoming Challenges of Life With of No Arms or Legs
- China’s First CRISPR Babies
- RARE: A Documentary On Rare Diseases
- Best Light Up For Rare Disease Day Buildings
- SMA Gene Therapy Now Available
- Top 7 Rare Disease Companies
- Jackson Laboratory Rare Disease Research Center
- Vagus Nerve Therapy
- What is Polyvagal Theory
- Wilma Rudolph A Story Of Defying The Odds
- Ball Pits for Sensory Integration
- FSU Institute for Pediatric Rare Diseases
- Oxytocin Nasal Spray Possible Treatment For Autism
- New Innovation And Expansion Of Gene Therapy In 2024
- Terry Fox – A Story Of Making A Difference
- Creating Incentives For Researcher And Doctors To Focus On Rare Diseases
- How Melatonin And Serotonin Are Needed For Good Sleep
- Improving Clinical Trials For Rare Diseases
- Parent Intuition Is Real And Leads To Diagnosing Rare Diseases
- Inclusive Seats Coming To Airlines To Improve Travel
- Vagus Nerve Is The Key To Lower Stress And Anxiety
- Horse Therapy A.K.A. Equine-Assisted Psychotherapy EAP
- Oral Placement Therapy
- ADHD And The Role Of Dopamine And Stimulants
- Rare Disease Day News Recap
- The Innovation Of CRISPR Is Coming
- Kaleidoscope: Rare Disease Stories
- The Importance Of Early Intervention
- Using the Power of AI for Rare Diseases
- Exercise and Behavioral Therapy More Effective Than SSRIs
- Improving the Rare Disease Program to Bring Faster Cures
- Ireland Rare Disease Stories
- Breathwork Exercises
- PEMF Mat
- Rare Disease Beer
- Hydrogen Water
- PS128 Probiotic
- Targeted Supplementation To Avoid Deficiency
- Maximizing Dopamine
- Morning Routine For Parents and Children
- Folic and Folate Acid
- Rare Disease TikTok
- What Is Red Light Therapy?
- Maximizing ATP through Mitochondrial Capacity Increase
- Christmas Eve Drinking Vodka in the Park
- Bangkok Caregiver Meet-up
- Murals as Catalysts for Social Change and Awareness
- A Beacon of Hope: Partnering with Rare Disease Taiwan to Host an Event for Children with AADC Deficiency
- Connecting Hearts and Minds: Hosting an AADC Caregiver Meet-up in the Scenic Mountains of Taoyuan
- Boston Caregiver Lifestyle Meet-up
- Escaping Exclusion
- Mom from India Shares Her AADC Gene Therapy Experience
- Behavioral Therapy Event
- Sensory Integration Virtual Event
- Creating a Genetic Profile to Improve Diagnosis
- Speech Therapy Event
- The Best Gene Therapy for AADC Deficiency
- Occupational Therapy Event
- TeachRare’s Physical Therapy Event – Promoting Inclusivity and Access to Education for All
- A Rare Disease Parent’s Journey: Going Full Circle with TeachRare
- Melatonin For Kids Could Delay Puberty
- A Mother’s Message of Hope for AADC Deficiency
- A Father’s Perspective on AADC Deficiency
- A Brazilian Mom’s Story of AADC Deficiency and Hope
- Prayers and Miracles at Work: Stories of Hope from TeachRare
- CareBears Love for Rylae: A Story of Hope and Support for Children with Rare Diseases
- The Innovation of Upstaza Gene Therapy
- Adaptive Clothing for Children
- Preventing Aspiration of Children with Rare Diseases
- The Importance of a Comprehensive Check-Up Before Gene Therapy for Children with Rare Diseases
- Planning for Gene Therapy
- Traveling During Covid
- Defying Statistics By Crawling
- The Wait For Gene Therapy
- Secret Physical Therapy
- Physical Therapy After Gene Therapy