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Projects
- Rare Talks Spotify Podcast
- BBC Sounds Health Check – TeachRare’s Partnership in Promoting Health and Well-being
- Metabolic Support UK Nomination
- Patient Expert for NICE – Teach Rare Project
- TeachRare’s Review in New Scientist: Gene Therapy Offers Hope for Children with Rare Diseases
- TeachRare’s Richard Poulin Recognized as Social Impact Hero by Authority Magazine
- SSIEM 2022 Symposium
- Houston AADC Meet Up 2022
- 14th European Epilepsy Congress
- European Medicines Agency Conference
- Rare Disease Day 2022
- International Epilepsy Congress – Advancing Research and Awareness to Improve Epilepsy Care
- 14th Congress of the European Paediatric Neurology Society
- Enrolling in Clinical Trials Workshop: Empowering Families of Children with Rare Diseases
- Child Neurology Foundation Genetic Testing
- Play-Based Learning Workshop: Enhancing Development for Children with Rare Diseases
- CheckRare Interview
- Annual Charity Fundraiser
Events
NonePosts
- Boston Caregiver Lifestyle Meet-up
- Escaping Exclusion
- Mom from India Shares Her AADC Gene Therapy Experience
- Behavioral Therapy Event
- Sensory Integration Virtual Event
- Creating a Genetic Profile to Improve Diagnosis
- Speech Therapy Event
- The Best Gene Therapy for AADC Deficiency
- Occupational Therapy Event
- TeachRare’s Physical Therapy Event – Promoting Inclusivity and Access to Education for All
- A Rare Disease Parent’s Journey: Going Full Circle with TeachRare
- A Mother’s Message of Hope for AADC Deficiency
- A Father’s Perspective on AADC Deficiency
- A Brazilian Mom’s Story of AADC Deficiency and Hope
- Prayers and Miracles at Work: Stories of Hope from TeachRare
- CareBears Love for Rylae: A Story of Hope and Support for Children with Rare Diseases
- The Innovation of Upstaza Gene Therapy
- Adaptive Clothing for Children
- Preventing Aspiration of Children with Rare Diseases
- The Importance of a Comprehensive Check-Up Before Gene Therapy for Children with Rare Diseases
- Planning for Gene Therapy
- Traveling During Covid
- Defying Statistics By Crawling
- The Wait For Gene Therapy
- Secret Physical Therapy
- Physical Therapy After Gene Therapy
