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Donation Total: $100

caregiver

caregiver

Boston Rare Disease Parent Meet-up

Boston Caregiver Lifestyle Meet-up

thailand elephant

A Rare Disease Parent’s Journey: Going Full Circle with TeachRare

AADC Deficiency Mother Message of Hope

A Mother’s Message of Hope for AADC Deficiency

January 23, 2023
by Judy Wei

AADC Deficiency Father Perspective

A Father’s Perspective on AADC Deficiency

Brazil Gene Therapy

A Brazilian Mom’s Story of AADC Deficiency and Hope

caregiver lifestyle series behavior management

Caregiver Lifestyle Series: Behavior Management – Empowering Caregivers and Enhancing the Lives of Those with Disabilities

caregiver lifestyle series sensory integration

Join the Caregiver Lifestyle Series: Understanding Sensory Integration for Children with Rare Diseases

caregiver lifestyle series speech therapy

Join the Caregiver Lifestyle Series: Understanding Speech Therapy for Children with Rare Diseases

Occupational Therapy Events

Join the Caregiver Lifestyle Series: An Online Course Exploring Occupational Therapy for Children with Rare Diseases

Caregiver Lifestyle Physical Therapy

Caregiver Lifestyle Series – Physical Therapy

Caregiver Livestyle Meet-up

Caregiver Lifestyle Series – Meetup

INFORMATION

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NEWSLETTER

RECENT NEWS

Rare Disease Event in Taiwan

A Beacon of Hope: Partnering with Rare Disease Taiwan to Host an Event for Children with AADC Deficiency

September 17, 2023

Boston Rare Disease Parent Meet-up

波士頓看護者生活方式聚會

September 9, 2023

Boston Rare Disease Parent Meet-up

บอสตันผู้ดูแลไลฟ์สไตล์ Meet-up

September 9, 2023

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