了解 "稀有教育 "的使命和愿景

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支持我们的社区

帮助一个小社区

我们一开始就把我们的小社区团结起来,以帮助孩子们取得成功和发展为共同目标。 如今,我们正与其他患有罕见病和未确诊疾病的群体携手合作。 此外,我们还为有特殊需要的儿童提供支持。 我们的使命是

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再小的贡献也会产生巨大的影响

加入社区,为罕见儿童提供教育

使命与愿景

帮助不容易看到的家庭。

与发病率较高的疾病相比,罕见病或未确诊疾病的家庭得不到同样的关注或资助,但我们应该得到同样的支持,因为我们是一个更大的群体。

Mission

Educational support for families of rare diseases, undiagnosed diseases, and special needs.
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Community

Creating awareness about rare disease and improving early diagnosis.
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Vision

Providing success and creating progress for each individual in our program.
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Support Rare Diseases

认识我们的团队

我们都是志愿者,是他们成就了我们的组织。

8 项核心价值观

数字 8 在世界各地都具有重要的精神和文化意义。 它类似于无限的象征,涉及能量的循环流动路径。 数字 8 与自信、内心的力量、内在的智慧、社会产生共鸣,同时还具有对人类的爱和对和平的渴望。

我们用这个数字来限制我们的价值观,并集中我们的注意力。 非营利组织和慈善机构熟悉 “身兼数职 “的理念,并将自己扩展到所有需要他们的领域。 但是,我们也必须有一个核心的价值观基础。

Advocacy

Building awareness and advocating for resources and support.

Collaboration

Working with healthcare, organizations, and businesses to benefit our community.

Compassion

Understanding the unique needs of families and developing empathy in others.

Faith

Having faith in ourselves and our community to progress and improve everyday.

Family

Putting families and their needs first while remaining open and transparent.

Inspiration

Seeking improved care and treatments by drawing on inspiration from everywhere.

Success

Celebrating the success of each individual and motivating future development success.

Knowledge

Drawing on the knowledge and expertise from various professional and organizations.