- Phone: (904) 686-8515
- Email: contact@teachrare.org
Traveling to #taiwan and hosting a meet-up for AADC deficiency caregivers was an honor and joy. Making memories with families who had similar stories helped us. We look forward to sharing each family's story from our interviews. Please review the highlights from this wonderful event.
Parents of AADC deficiency children met in Taiwan to eat food, share stories, and exchange tips. The goal is to provide free education for parents on...
teachrare.orgRylae couldn’t move before gene therapy. Her dad had to act as a puppeteer to encourage her. She started moving her little fingers when she saw the lights turned on! #specialneedsfamily #aadcdeficiency
"Individuals with #disabilities are 8x less likely to be gainfully employed than those without disabilities." Let's #change that!
By: Dr. Amy Spriggs. Research has shown that participation in vocational training or job-related activities in high school can lead to better...
www.gettingsmart.comThis is the first video, Week 1, in our series about home therapy.
We begin with a circle time. This builds a routine and helps to start our activities. We then go through 4 exercises. You could do each exercise 3 times or each of them one time and repeat the circuit. Whichever works best ...for you and your child.
Adapt the exercises to meet your comfort zone and your child’s ability. Complete it at least once a day for each week. You can make it easier or more difficult depending on the day.
The most important thing is to play and make memories.
OK, LET’S PLAY AND MAKE MEMORIES <3
This is the first video, Week 1, in our series about home therapy.We begin with a circle time. This builds a routine and helps to start our...
youtu.beHome Therapy Lesson - Week 1
We stay optimistic and associate with the people and organizations that support us. However, many do not. It can be very demotivating and painful trying to escape exclusion #inclusion 💜 :
It never gets easy. Each time you face it, it burns with the same intensity as the first time. Life is unfair, but society can choose to be just.
teachrare.orgWe combined learning music and patterns while working on #occupationaltherapy skills. We started by being puppeteers by moving Rylae’s finger. Gradually she became independent so we taped Rylae’s fingers to help use her pointer finger. #specialneeds #musictherapy #earlyinterventiontherapy
We combined learning music and patterns while working on #occupationaltherapy skills. We started by being puppeteers by moving Rylae’s finger. Gradually she became independent so we taped Rylae’s fingers to help use her pointer finger. #specialneeds #musictherapy #earlyinterventiontherapy
Life of a special need dad. #funnymoments #specialneedsparent
Rylae-Ann made her for few steps at 3 year old in front the camera before her great grandmother passed away. GG never got to meet Rylae in person but we know she is looking down on her. Thank you GG for cheering Rylae on!! #greatgrandma #firststeps #aadcdeficiency
We stay optimistic and associate with the people and organizations that support us. However, there are many that do not. It can be very demotivating and painful trying to escape exclusion:
Rare disease and special needs families face many challenges and over time they learn to overcome them. However, this is the most difficult barrier...
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