Rare Disease Day AADC Deficiency

Rare Disease Day 2022

To bring awareness about rare diseases and to inspire hope in our community, we wrote an open letter and created a video.

Rare Disease Day is a global event and awareness day held on 28 February. The goal is to raise awareness and generate change for the 300 million people worldwide living with a rare disease, their families, and carers. This was our first year participating.

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