Pages
Projects
- Rare Talks Spotify Podcast
- BBC Sounds Health Check – TeachRare’s Partnership in Promoting Health and Well-being
- Metabolic Support UK Nomination
- Patient Expert for NICE – Teach Rare Project
- TeachRare’s Review in New Scientist: Gene Therapy Offers Hope for Children with Rare Diseases
- TeachRare’s Richard Poulin Recognized as Social Impact Hero by Authority Magazine
- SSIEM 2022 Symposium
- Houston AADC Meet Up 2022
- 14th European Epilepsy Congress
- European Medicines Agency Conference
- Rare Disease Day 2022
- International Epilepsy Congress – Advancing Research and Awareness to Improve Epilepsy Care
- 14th Congress of the European Paediatric Neurology Society
- Enrolling in Clinical Trials Workshop: Empowering Families of Children with Rare Diseases
- Child Neurology Foundation Genetic Testing
- Play-Based Learning Workshop: Enhancing Development for Children with Rare Diseases
- CheckRare Interview
- Annual Charity Fundraiser
活动
None文章
- 波士顿护理人员生活方式聚会
- 摆脱排斥
- 印度妈妈分享她的 AADC 基因治疗经历
- 行为疗法活动
- 感觉统合虚拟活动
- 创建基因图谱以改进诊断
- 语言治疗活动
- 治疗 AADC 缺乏症的最佳基因疗法
- 职业治疗活动
- TeachRare 的物理治疗活动–促进包容性和全民受教育机会
- 一位罕见病家长的心路历程：与罕见病教育同行
- 一位母亲为 AADC 缺乏症患者带来希望的信息
- 一位父亲眼中的 AADC 缺陷
- 一位巴西妈妈关于 AADC 缺乏症和希望的故事
- 工作中的祈祷与奇迹：来自罕见教育的希望故事
- CareBears 爱蕾蕾：罕见病儿童的希望与支持的故事
- Upstaza 基因疗法的创新
- 儿童适应性服装
- 预防罕见病儿童吸入
- 罕见病患儿接受基因治疗前全面检查的重要性
- 基因治疗规划
- 科维德期间的旅行
- 通过爬行挑战统计数据
- 等待基因疗法
- 秘密物理治疗
- 基因治疗后的物理治疗
