關於機構

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支持我們

支援小社群

我們透過相同目標開始團結所有小社群,幫助孩童成長與發展 現今,我們結合各界罕見疾病與未確診疾病組織的力量 此外,我們能幫助特殊需求的孩童 我們的任務是:

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Volunteers In 2020

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People We Helped In 2020

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Funds We Collected

即便微小的貢獻也有很大的影響

加入社群給罕見兒童教育

使命與願景

幫助能見度低的家庭

患有罕見疾病或未確診疾病的家庭沒有得到與發病率較高的疾病相同的關注或資助,但我們應當得到相同的支持

Mission

Educational support for families of rare diseases, undiagnosed diseases, and special needs.
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Community

Creating awareness about rare disease and improving early diagnosis.
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Vision

Providing success and creating progress for each individual in our program.
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Support Rare Diseases

我們的團隊

自願者使團隊更加偉大

8 項核心價值觀

數字”8″在世界各地具有非凡意義 它代表了無限以及處理能量的回收路徑 數字 8 與自信、內在力量、內在智慧、社會共鳴,同時熱愛人類,渴望和平

我們使用這個數字來限制我們的價值觀並集中我們的注意力 非營利組織和慈善機構懂得身兼多職並在所有需要的領域擴展自己 儘管如此,我們必須也同時具備自身的核心價值

Advocacy

Building awareness and advocating for resources and support.

Collaboration

Working with healthcare, organizations, and businesses to benefit our community.

Compassion

Understanding the unique needs of families and developing empathy in others.

Faith

Having faith in ourselves and our community to progress and improve everyday.

Family

Putting families and their needs first while remaining open and transparent.

Inspiration

Seeking improved care and treatments by drawing on inspiration from everywhere.

Success

Celebrating the success of each individual and motivating future development success.

Knowledge

Drawing on the knowledge and expertise from various professional and organizations.