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          Certain other gifts, real property, personal property, in-kind gifts, non-liquid securities, and contributions whose sources are not transparent or whose use is restricted in some manner, must be reviewed prior to acceptance due to the special obligations raised or liabilities they may pose for Alone Covid 19.

          The Alone Covid 19 will provide acknowledgments to donors meeting tax requirements for property received by the charity as a gift. However, except for gifts of cash and publicly traded securities, no value shall be ascribed to any receipt or other form of substantiation of a gift received by Alone Covid 19.

          The Alone Covid 19 will respect the intent of the donor relating to gifts for restricted purposes and those relating to the desire to remain anonymous. With respect to anonymous gifts, the Alone Covid 19 will restrict information about the donor to only those staff members with a need to know.

          The Alone Covid 19 will not compensate, whether through commissions, finders' fees, or other means, any third party for directing a gift or a donor to the Alone Covid 19.

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Acceptance of any contribution, gift or grant is at the discretion of the Alone Covid 19. The Alone Covid 19 will not accept any gift unless it can be used or expended consistently with the purpose and mission of the Alone Covid 19.

No irrevocable gift, whether outright or life-income in character, will be accepted if under any reasonable set of circumstances the gift would jeopardize the donor’s financial security.

The Alone Covid 19 will refrain from providing advice about the tax or other treatment of gifts and will encourage donors to seek guidance from their own professional advisers to assist them in the process of making their donation.

The Alone Covid 19 will accept donations of cash or publicly traded securities. Gifts of in-kind services will be accepted at the discretion of the Alone Covid 19.

Certain other gifts, real property, personal property, in-kind gifts, non-liquid securities, and contributions whose sources are not transparent or whose use is restricted in some manner, must be reviewed prior to acceptance due to the special obligations raised or liabilities they may pose for Alone Covid 19.

The Alone Covid 19 will provide acknowledgments to donors meeting tax requirements for property received by the charity as a gift. However, except for gifts of cash and publicly traded securities, no value shall be ascribed to any receipt or other form of substantiation of a gift received by Alone Covid 19.

The Alone Covid 19 will respect the intent of the donor relating to gifts for restricted purposes and those relating to the desire to remain anonymous. With respect to anonymous gifts, the Alone Covid 19 will restrict information about the donor to only those staff members with a need to know.

The Alone Covid 19 will not compensate, whether through commissions, finders' fees, or other means, any third party for directing a gift or a donor to the Alone Covid 19.

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Donation Total: $100

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Best Gene Therapy for AADC Deficiency
健康, 葯

AADC缺乏症的最佳基因療法

  • 6 4 月, 2023
  • by Richard Poulin III

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https://t.co/8ffmdTgukE Teaching and learning for rare diseases, undiagnosed diseases, and special education.

edu4rare
edu4rare avatar; Teach RARE @edu4rare ·
24 9 月 1705912116639859114

"Individuals with #disabilities are 8x less likely to be gainfully employed than those without disabilities." Let's #change that!

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Life After School: Preparing Students with Disabilities for Success

By: Dr. Amy Spriggs. Research has shown that participation in vocational training or job-related activities in high ...

www.gettingsmart.com

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23 9 月 1705584143365795843

We stay optimistic and associate with the people and organizations that support us. However, many do not. It can be very demotivating and painful trying to escape exclusion #inclusion 💜 :

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The Most Difficult Challenge Rare Disease and Special Needs Families Face

It never gets easy. Each time you face it, it burns with the same intensity as the first time. Life is unfair, but society can choose to be just.

teachrare.org

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edu4rare avatar; Teach RARE @edu4rare ·
17 9 月 1703363322874356172

Congratulations to the #AADCdeficiency Team at @NtuhTw on winning Gold🥇. Learn about the amazing people behind the #sceince. https://www.ntuh.gov.tw/ntuh/News.action?l=en_US&q_type=-1&q_itemCode=13487&l=en_USNational

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16 9 月 1702847614058971247

A fellow #AADCdeficiency family shares how innovation and collaboration between @PTCBio and @ClearPointNeuro brought about life-changing results for their child:

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edu4rare avatar; Teach RARE @edu4rare ·
14 9 月 1702241872532660597

Supporting our daughter by being a puppeteer. Challenges of #specialneed and #RareDisease life:

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As AADC deficiency parents, we often felt like puppeteers – AADC News

Before his daughter with AADC deficiency was able to move on her own, columnist Richard E. Poulin III helped guide her through the motions.

aadcnews.com

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AADC Taiwan Caregiver Meet Up

Connecting Hearts and Minds: Hosting an AADC Caregiver Meet-up in the Scenic Mountains of Taoyuan

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A Beacon of Hope: Partnering with Rare Disease Taiwan to Host an Event for Children with AADC Deficiency

17 9 月, 2023
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9 9 月, 2023
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